The Brands: One step at a time

Thursday, July 29, 2010

One step at a time

One step at a time, one day at a time. This is fast becoming the way I approach everything in life. I am striving to not worry about the troubles of tomorrow, or the next day, and rather living in the grace of the moment. Tomorrow is tomorrow, not today. I applied that to the hills that I climbed today on a run in the SouthShore trails of Cootes Paradise. And it worked! So long as I don't look too far up the hill that I'm climbing, I can keep going. One step at a time. I'm sure many of us can relate to this in some way for much of our lives.

We had a strange day, one day after heavy chemo. Caleb was very tired all morning, and by the afternoon he had spiked a fever. A fever is a little different for Caleb right now, because they don't immediately start him on antibiotics. His blood counts are high enough to sustain a fight. They had to draw blood from his arm to make sure it's not his port that causing the fever. We'll get results on that tomorrow. The fever has come down, and he is peacefully sleeping now. Tim is with him.

They also stopped the 6 MP for now, even though it tastes like icecream. His liver needs some time to catch up with all of this chemo. They'll start it again when his liver function is normal.

We had a good afternoon, after the fever came down. Caleb played car wash for an hour at least. We love cars.

We're hopeful for a good night's sleep. Same for you.

J

1 comment:

anya genevieve said...: Hang in there guys; praying that things are better for Caleb today. love and prayers, anya; July 30, 2010 at 3:23 PM

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What is ALL?

Caleb has ALL, a form of leukemia. From what I understand (here's the dummy's guide to leukemia), leukemia means that something has gone wrong in blood cell production.

Blood is made up of 3 main parts, red blood cells, white blood cells, and platelets. The red blood cells do things like carry oxygen and nutrients through your body. The white blood cells fight infections and keep you healthy. The platelets glue it all together. (I did say this was the dummy's guide, remember.) Bone marrow is where these cells are made and released into the blood stream.

In Caleb's leukemia, his bone marrow is producing the 3 kinds of cells, but some of the white blood cells are being made wrong. These white blood cells are not maturing, they don't perform any function, and they aren't dying off. They take up space, and made it so that Caleb's red blood cells, functioning white cells, and platelets were having a hard time doing their jobs, and the production of the blasts was taking over. This is why before we were admitted to the hospital, Caleb was tired and pale. His blood just wasn't able to do what it should do.

Chemo treatments are designed to kill back the blasts. The only way to do this has a lot of extra damage (collateral damage) as well, which we see in side effects like hair loss and need for blood transfusions. Because chemo also knocks back regular blood cells, Caleb needs blood and platelet transfusions to replace what is being lost through treatment. White blood cells cannot be transfused, which is why he has nothing to fight off infections. We can't replace those ones. When the drugs are less intense and his body can gradually go back to doing what it should be doing, white blood cell production should return. We will have to be careful for a long time, though.

Hair loss occurs because cells that are replaced often in our body, like hair, can't keep up production. The cells die off faster than they are replaced. Other fast growing/often replaced cells are in our mouths and our nails. These are all affected.

I hope my dummy's guide to leukemia makes sense. It's the way I currently understand things. People in the health care profession may cringe at my descriptions, but hopefully it's accurate enough to explain what Caleb's going through. Maybe it will help you explain it to your kids. For now, we just say we're blasting blasts.

We are the Brands

We are three kids, two parents, and one dog. And too many fish. We love our city, time in the outdoors, playing soccer, camping, and making music. Our faith is central to our lives.

On June 23, pieces of what had previously been a concerning question about our son Caleb's health came together in a diagnosis of leukemia. It all happened rather quickly, after bringing him to the ER at McMaster hospital on Monday, June 21. We're absorbing this news, and trying to learn how to cope with leukemia and a young family. Our hearts are torn, but we feel the love of many.

This blog is intended to share with our loved ones and their loved ones what is happening for Caleb and the rest of us. I must say that it is possibly as much information-giving as it is therapeutic writing. Thank you for taking the time to share with us our experience. We find strength in numbers, and in shared experiences.