We made it!

Here is Caleb with Kathryn, one of our favourite nurses.



We enjoyed a family supper together in the Ronald McDonald Room on Friday night, thanks to a friend for bringing it!

Here's Caleb's tube, his favourite tube as he said. He says he likes the red cap.

And this is the tube, no longer connected. Nurse Ashley is holding the gripper needle that used to give Caleb IV fluids.

This morning Nella and I went to the hospital to visit with Caleb and Tim. Aleah stayed home with Opa and Oma. Caleb was in good spirits: he had a good night of sleep with no IV to disturb him. Today's nurse, Ashley, came and told us that we could go home! Hurray! Caleb needed to get checked out by the doctor, which he did, and his port needed to be "de-accessed." He was not impressed about being de-accessed, mostly just because he doesn't like being touched by doctors or nurses at all if he can help it. We joked about how this is his favourite tube and he'd like to keep it always. I've included pictures of it. Caleb refused to take pictures because he was too angry about the whole thing, so I said I would. So I get to put them up.

We had a nice day today. We arrived home around lunchtime, and Caleb and Tim spent most of the afternoon digging weeds in the backyard. I am so thrilled with Caleb's energy level and I hope it sticks around. We went for a campfire with some friends, and the kids all got to jump on the trampoline. Our dog Tucker has spent most of his summer at this friends' place, so the highlight was visiting Tucker. We felt much closer to normal by the end of the day, and we are thankful. Around 8pm Caleb decided it was time to go. He said "I'm having a good time, but I'm tired."

He started his 6MP again tonight, so we'll see how that goes. His liver function tests are normal again; our bodies are amazing! He's got a rash, but we're pretty sure it's from the hospital environment--it showed up after all the meds were done. A good oatmeal bath and he already looks better. We go back for clinic on Thursday. So far Caleb's counts are doing okay--they've gone down but are not too low yet. Thursday will be primarily to check on how things are going with his blood counts, and transfuse him if necessary.

Have a great long weekend!

J