The Brands: From Caleb

Monday, December 6, 2010

From Caleb

These are my trains. We decorated them.

This is a puzzle. We made it with Alida.

this isTUCKER.

Our fish are doing well in their fsh tank.

Typed by Caleb.

3 comments:

Debbie said...: Tim & Jessica

We have lost touch yet now I hear of the journey the two of you have been on with your sweet Caleb. Since I visited him newly born, you have been blessed with two more little Brands! They are lovely.

Jess, from the time I introduced Tim as your hu-boyfriend, I remember you both fondly. We pray that God strengthen your feet for the path that He has set you upon.
We send you big hugs.; December 6, 2010 at 11:37 AM
d said...: Caleb, your fish look great! Our fish are really lonely, so I think we will need to add some friends now that I've seen your aquarium. Thanks for reminding me to look after them. We really like the trains around your tree too.

Aunt Sara; December 7, 2010 at 10:05 PM
anya genevieve said...: Hey caleb buddy, thanks for sharing your pictures and your thoughts with all of us! Lucky you guys - you get to have a REAL Christmas tree! My family and I, Hans and Joanne, and me and my brothers and sister used to go each year to a tree farm and find the perfect Christmas tree and I loved going and doing that - so reading about your family's trip to find your Christmas Tree made me remember happy memories when I was little and I want to thank you and your family for that. I never had a train around my tree though, so you definetly got me beat with that one!! Do the Thomas and the other trains get to ride on the track you made?? I love how you and your sisters decorated the trains for Christmas too!! You hang in there buddy, and keep being the strong, brave and courageous boy that you are - and hopefully I'll get to come and visit you and your family soon ok?? for now, give your mom a big hug from me will ya?? Thanks babe! prayers and hugs, anya xoxo; December 8, 2010 at 5:08 PM

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What is ALL?

Caleb has ALL, a form of leukemia. From what I understand (here's the dummy's guide to leukemia), leukemia means that something has gone wrong in blood cell production.

Blood is made up of 3 main parts, red blood cells, white blood cells, and platelets. The red blood cells do things like carry oxygen and nutrients through your body. The white blood cells fight infections and keep you healthy. The platelets glue it all together. (I did say this was the dummy's guide, remember.) Bone marrow is where these cells are made and released into the blood stream.

In Caleb's leukemia, his bone marrow is producing the 3 kinds of cells, but some of the white blood cells are being made wrong. These white blood cells are not maturing, they don't perform any function, and they aren't dying off. They take up space, and made it so that Caleb's red blood cells, functioning white cells, and platelets were having a hard time doing their jobs, and the production of the blasts was taking over. This is why before we were admitted to the hospital, Caleb was tired and pale. His blood just wasn't able to do what it should do.

Chemo treatments are designed to kill back the blasts. The only way to do this has a lot of extra damage (collateral damage) as well, which we see in side effects like hair loss and need for blood transfusions. Because chemo also knocks back regular blood cells, Caleb needs blood and platelet transfusions to replace what is being lost through treatment. White blood cells cannot be transfused, which is why he has nothing to fight off infections. We can't replace those ones. When the drugs are less intense and his body can gradually go back to doing what it should be doing, white blood cell production should return. We will have to be careful for a long time, though.

Hair loss occurs because cells that are replaced often in our body, like hair, can't keep up production. The cells die off faster than they are replaced. Other fast growing/often replaced cells are in our mouths and our nails. These are all affected.

I hope my dummy's guide to leukemia makes sense. It's the way I currently understand things. People in the health care profession may cringe at my descriptions, but hopefully it's accurate enough to explain what Caleb's going through. Maybe it will help you explain it to your kids. For now, we just say we're blasting blasts.

We are the Brands

We are three kids, two parents, and one dog. And too many fish. We love our city, time in the outdoors, playing soccer, camping, and making music. Our faith is central to our lives.

On June 23, pieces of what had previously been a concerning question about our son Caleb's health came together in a diagnosis of leukemia. It all happened rather quickly, after bringing him to the ER at McMaster hospital on Monday, June 21. We're absorbing this news, and trying to learn how to cope with leukemia and a young family. Our hearts are torn, but we feel the love of many.

This blog is intended to share with our loved ones and their loved ones what is happening for Caleb and the rest of us. I must say that it is possibly as much information-giving as it is therapeutic writing. Thank you for taking the time to share with us our experience. We find strength in numbers, and in shared experiences.